9781139875981 (ebook) 9781107076075 (hardback) 9781107429796 (paperback)
Cambridge bioethics and law.
The privacy concerns discussed in the 1990s in relation to the New Genetics failed to anticipate the relevant issues for individuals, families, geneticists and society. Consumers, for example, can now buy their personal genetic information and share it online. The challenges facing genetic privacy have evolved as new biotechnologies have developed, and personal privacy is increasingly challenged by the irrepressible flow of electronic data between the personal and public spheres and by surveillance for terrorism and security risks. This book considers the right to know and the right not to know about your own and others' genomes. It discusses new privacy concerns and developments in ethical thinking, with the greater emphasis on solidarity and equity. The multidisciplinary approach covers current topics such as biobanks and forensic databases, DIY testing, group rights and accountability, the food we eat and the role of the press and the new digital media.
Title from publisher's bibliographic system (viewed on 05 Oct 2015).
Formatted Contents Note
Introduction / Ruth Chadwick, Mairi Levitt and Darren Shickle Part I. Philosophical and Legal Issues The right to know and the right not to know : the emerging debate / Ruth Chadwick, Mairi Levitt and Darren Shickle Autonomy and a right not to know / Jørgen Husted Privacy and the right not to know : a plea for conceptual clarity / Graeme Laurie art II. Issues in Genetics Biobanks and feedback / Kadri Simm Suspects, victims and others : producing and sharing forensic genetic knowledge / Robin Williams and Matthias Weinroth Empowered by choice? / Mairi Levitt DIY genetics : the right to know your own genome / Barbara Prainsack Genomics, inconvenient truths and accountability / Jeantine Lunshof and Ruth Chadwick Part III. Emerging Issues The right to know and the right not to know in the era of neoliberal biopolitics and bioeconomy / Henk Ten Have The parental love argument against 'designing' babies : the harm in knowing that one has been selected or enhanced / Anca Gheaus The press and the public interest / Joachim Allgaier The inescapability of knowing and inability to not know in the digital society / Richard Watermeyer The food we eat : the right to be informed and the duty to inform / Michiel Korthals.