The right to know and the right not to know :: genetic privacy and responsibility /: edited by Ruth Chadwick, Mairi Levitt and Darren Shickle.

Name: The right to know and the right not to know : genetic privacy and responsibility / edited by Ruth Chadwick, Mairi Levitt and Darren Shickle.
ISBN: 9781139875981

Chadwick, Ruth F.,; Levitt, Mairi,; Shickle, Darren,

The right to know and the right not to know : genetic privacy and responsibility / edited by Ruth Chadwick, Mairi Levitt and Darren Shickle.

Chadwick, Ruth F., editor.; Levitt, Mairi, editor.; Shickle, Darren, editor.

2014

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Title

The right to know and the right not to know : genetic privacy and responsibility / edited by Ruth Chadwick, Mairi Levitt and Darren Shickle.

Added Author

Chadwick, Ruth F., editor.
Levitt, Mairi, editor.
Shickle, Darren, editor.

Edition

Second edition.

Imprint

Cambridge : Cambridge University Press, 2014.

Description

1 online resource (xiii, 216 pages) : digital, PDF file(s).

Series

Cambridge bioethics and law.

Formatted Contents Note

Introduction / Ruth Chadwick, Mairi Levitt and Darren Shickle
Part I. Philosophical and Legal Issues
The right to know and the right not to know : the emerging debate / Ruth Chadwick, Mairi Levitt and Darren Shickle
Autonomy and a right not to know / Jørgen Husted
Privacy and the right not to know : a plea for conceptual clarity / Graeme Laurie
art II. Issues in Genetics
Biobanks and feedback / Kadri Simm
Suspects, victims and others : producing and sharing forensic genetic knowledge / Robin Williams and Matthias Weinroth
Empowered by choice? / Mairi Levitt
DIY genetics : the right to know your own genome / Barbara Prainsack
Genomics, inconvenient truths and accountability / Jeantine Lunshof and Ruth Chadwick
Part III. Emerging Issues
The right to know and the right not to know in the era of neoliberal biopolitics and bioeconomy / Henk Ten Have
The parental love argument against 'designing' babies : the harm in knowing that one has been selected or enhanced / Anca Gheaus
The press and the public interest / Joachim Allgaier
The inescapability of knowing and inability to not know in the digital society / Richard Watermeyer
The food we eat : the right to be informed and the duty to inform / Michiel Korthals.

Summary

The privacy concerns discussed in the 1990s in relation to the New Genetics failed to anticipate the relevant issues for individuals, families, geneticists and society. Consumers, for example, can now buy their personal genetic information and share it online. The challenges facing genetic privacy have evolved as new biotechnologies have developed, and personal privacy is increasingly challenged by the irrepressible flow of electronic data between the personal and public spheres and by surveillance for terrorism and security risks. This book considers the right to know and the right not to know about your own and others' genomes. It discusses new privacy concerns and developments in ethical thinking, with the greater emphasis on solidarity and equity. The multidisciplinary approach covers current topics such as biobanks and forensic databases, DIY testing, group rights and accountability, the food we eat and the role of the press and the new digital media.

Note

Title from publisher's bibliographic system (viewed on 05 Oct 2015).

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www

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Linked Resources

Access provided by Berkeley Law Library

Alternate Title

Cambridge Books Online.

Language

English