Protecting genetic privacy in biobanking through data protection law / Dara Hallinan.

First edition.

Oxford : Oxford University Press, 2021.

1 online resource (304 pages).

Oxford scholarship online.

Biobanks are critical infrastructure for medical research but they are also the subject of considerable ethical and legal uncertainty. Given that biobanks process large quantities of genomic data, questions have emerged as to how genetic privacy should be protected. What types of genetic privacy rights and rights holders should be protected and to what extent? Since 25th May 2018 the General Data Protection Regulation (GDPR) has applied and now occupies a key position in the European legal framework for the regulation of biobanking. This book takes an in-depth look at the function, problems, and opportunities presented by European data protection law under the GDPR as a framework for the protection of genetic privacy in biobanking in Europe.

This edition also issued in print: 2021.
Biobanks are critical infrastructure for medical research but they are also the subject of considerable ethical and legal uncertainty. Given that biobanks process large quantities of genomic data, questions have emerged as to how genetic privacy should be protected. What types of genetic privacy rights and rights holders should be protected and to what extent? Since 25th May 2018 the General Data Protection Regulation (GDPR) has applied and now occupies a key position in the European legal framework for the regulation of biobanking. This book takes an in-depth look at the function, problems, and opportunities presented by European data protection law under the GDPR as a framework for the protection of genetic privacy in biobanking in Europe.

Includes bibliographical references and index.

Description based on online resource; title from home page (viewed on March 12, 2021).

www

Print version :

Oxford Scholarship Online.
Oxford Academic.

English

Specialized.

9780191918919 (ebook)

Monographs & Serials
Electronic Resources