Biobanks, genomics, and research: a nightmare for public policy makers? / Alex Mauron
Biobanks in the literature / Bartha Maria Knoppers and Maøn H. Abdul-Rahman
Guidelines on biobanks: emerging consensus and unresolved controversies / Effy Vayena, Agomoni Ganguli-Mitra, and Nikola Biller-Andorno
Ethical issues regarding research biobanks: aims, methods, and main results of a qualitative study among international and US experts / Nikola Biller-Andorno ... [et al.]
Consent and use of samples / Bernice Elger
Consent to research involving human biological samples obtained during medical care / Bernice Elger
Collective consent / Agomoni Ganguli-Mitra
Withdrawal of consent and destruction of samples / Bernice Elger
Anonymization and coding / Bernice Elger
Informing participants about research results / Andrea Boggio
Ownership of samples and data and territorial restrictions concerning data and samples beyond national boundaries / Andrea Boggio
Public domain sharing, patents, and fees resulting from research involving genetic databases / Andrea Boggio
Benefit-sharing and remuneration / Agomoni Ganguli-Mitra
Transfer of samples and sharing of results : requirements imposed on researchers / Andrea Boggio
Towards an international framework: results of a meeting of an international group of scholars and scientists involved in legal and practical issues of biobanks / Alex Mauron
Biobanks and genomic research : what shape the future? / Alex Capron.